15
Feb

Restless

   Posted by: Richard   in Health

Damnit! I have just realised that it is nearly two weeks since I was last here.

One of the main reasons for this is a deterioration in the old M.E.

M.E. manifests itself in many ways, one of which is Restless Leg Syndrome.  Naturally in this day and age of acronyms, this is generally referred to as R.L.S.

R.L.S. is a nasty complaint in that it has an all pervasive effect on life.  During the morning, it is completely absent.   Around mid-afternoon, the first symptoms show up.  There is a mild tingling sensation in the calves and thighs which is easily ignored.  However as the evening progresses, it gets worse.  The sensation soon becomes like a series of constant electric pulses through the leg muscles, or else there is a sensation of dozens of ‘things’ crawling around inside the legs.

There are two very strange things about R.L.S.

The first is that the symptoms can be more or less instantly eliminated by standing up.  Also, leg movement helps a lot, so I seem to spend my evenings either standing around as if I were a stranger at a party, or else I am sitting frantically rotating alternate feet from the ankles.

The second, and more serious is that the symptoms are instantly magnified tenfold if the sufferer relaxes.  Any attempt at an afternoon nap is out of the question, as the legs are soon crawling, jumping and generally being extremely irritating.

Naturally, symptoms are very bad in bed, where one is at one’s most relaxed so sleep is difficult.  Even after getting to sleep, the legs continue to twitch during the night, so sleep is disturbed.

The result of all this is that the R.L.S. sufferer gets progressively more tired.  The sufferer feels tired during the day, but can’t get a nap.  Exhaustion sets in at night, and sleep comes, but it is disturbed.

There are no cures for R.L.S.  It is something that has to be endured.  There are medications that can relieve the symptoms, but they generally have fairly drastic side-effects, in my experience.

During the day, therefore, the brain is tired.  We all know what the thought process is like if we are short of sleep, but to the R.L.S. sufferer, this is a constant daily curse.  Thoughts are sluggish and there is little incentive to do anything that requires a bit of brain power.

M.E. manifests itself in many ways, such as the fatigue and occasional pain.  Of all of them,  R.L.S. must be the worst though.

This entry was posted on Sunday, February 15th, 2009 at 3:24 pm and is filed under Health. You can follow any responses to this entry through the RSS 2.0 feed. You can leave a response, or trackback from your own site.

7 comments so far

 1 

First: DAMN, I knew I had seen “my new” theme somewhere. I check all my regular haunts but missed here.

RLS: me too. Only a problem if trying to sleep. Have you tried Klonazepam (Clonopin)? Side effect is it makes you sleepy. Acceptable I figure since I’m lying in bed anyway.

February 15th, 2009 at 3:38 pm
Richard
 2 

Heh! Sorry about the theme Sixty! Hold on to yours as I have a habit of changing mine.

Clonazepam sounds very familiar. I have a feeling I tried that. Then there was Neurontin which had terrible side effects, so I had to quit that immediately. Now it’s Mirapexin which is damn all use!

February 15th, 2009 at 5:28 pm
 3 

It seems that you and I have more in common than I first thought. I also have RLS (family inherited) that, as I get older, manages to extend itself at times from my legs to whole body movements, some rather explosive in nature. I used to take Sinemet (carbidopa-levodopa) to control this problem but that eventually became ineffective. Now I’ve found great relief in using a medication for Parkinson’s Disease called Requip (ropinirole hydrochloride).

When used for Parkinson’s (which I don’t have), the dosage can vary between .25 mg 3x daily to 1 mg 3x daily. Since RLS is rather severe in my family and gets worse with age, I’m now at the point where I’m taking 1 mg 2x daily for my “RLS Plus” as I call it which pretty much eliminates uncontrolled movements altogether. Considering I’m rather slim and oversensitive to medication in general the side effects are amazingly few although I can’t take more than 1 mg at a time within 6 hour period. I take my first 1 mg after lunch and the second at 8:00 PM.

As a longtime sufferer from RLS I’d suggest bringing it up next time you see your doctor about trying this stuff out starting at a minimum dose (say .5 mg 1x daily like I did).

Just thinking of ya’ in an empathic kind of way.

February 15th, 2009 at 6:34 pm
 4 

i can’t imagine how disruptive this condition must be, sugar! so the best i can offer is hope that you find some relief via the meds others have suggested. peace. xoxo

February 15th, 2009 at 7:22 pm
Richard
 5 

Kirk M: I had a quit scout around the Internet, and certainly Ropinirole Hydrochloride is available here under some brand name or other. I’m taking a note of that as I have to visit the Vet soon. Many thanks.

As for the comment disappearing – strange, as it didn’t get stuck in moderation or anything. It just vanished into Cyberspace somewhere.

Savannah: Aw thanks! It is hardly life threatening, but it is one of the most intensely irritating things I have ever experienced. I just went through a phase of twitches and squirms, but they have now stopped, and my legs feel like they are on fire. Very very strange. :|

February 15th, 2009 at 8:06 pm
 6 

I’ll hold my hand up and admit I didn’t think RLS was a genuine thing. I’ve known others complain of it and just dismissed them as fidgety. I feel a little stupid now.

If your feet are hitched up in bed does that help at all? Is that a little naive?

February 16th, 2009 at 4:24 pm
Richard
 7 

Darren: It’s genuine all right! :(

Raising the legs only makes it worse. The ideal would be to sleep in a vertical position, or on an exercise bicycle!

February 16th, 2009 at 4:31 pm

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